O had her port cath inserted yesterday everything went well and so far there has been no signs of infection. As mentioned earlier she is to begin chemo Monday/Tuesday. Today we met with a chemo specialist who will be helping us through this plus her nurse who has been wonderful. The Dr today mentioned that O's type of cancer is very rare and only about 24 kids a year are diagnosed every year, she then went on to explain that her specific tumor,the position and that it is only in one eye is even more rare and they have only treated 4 kids like that. I guess from here we will be a part of a research study, crap and I thought I was done with "research", my fellow classmates can understand my humor in that. Anyways the tumor we found out yesterday did spread or "seed" as they call it. They again mentioned they will do all they can to save her eye. They also mentioned this will be a long road for O due to all the treatments. We will now have to stay here 14 days following her 2nd cycle of chemo which I believe brings us to June (beginning). From her last chemo treatment they will begin lazering and another treatment of freezing diferent sections of the eye. We are still on the waiting list for the Ronald McDonald house so hopefully soon. We are praying everything works and O does not have too many side effects, they will watch her closely and take good care of her. Thank you alll for your prayers and special emails it is so nice to hear from all of you and it means a lot.

Labels: Baby O's Journey

posted by Northern Mom @ 11:51 p.m.

2 Comments:

At 7:03 p.m., Unknown said…

It's been a while since I've checked out all the latest happenings on your blog. (Love your pic, btw!) Baby O is an adorable child. All my thoughts and prayers are with you guys and Baby O.

Hugs,
Christine
At 8:34 p.m., nancy said…

Looking for an update...hoping all is going as well as it can.